This week I finished my radiotherapy treatment. The four weeks have flown, despite the 90 minute round trip in the car each day to Poole hospital.
Dan sent me some beautiful sunny roses to mark the occasion and we’ll be going out on Saturday to celebrate this as well as our five year anniversary and hopefully a Wales win in the rugby.
Before the celebrations, I wanted to share my experience of radio with you…
Before starting radio, about half way through chemo, I had an appointment with a specialist doctor to arrange the next stage of treatment. We discussed what radio would involve and the possible side effects. With all that was going on with chemo, I’d forgotten much of what was discussed but this wasn’t a problem as we went over everything again in the pre-radio appointment, about a week before starting.
At the pre-radio appointment I was given the tattoos that were mentioned in the initial appointment – permanent marks that would make life easier for the radiologists. I had imagined the tattoos would be a series of ‘blobs’ the size of bindis but instead I have three tiny pinprick dots on my chest which you wouldn’t notice for looking. Before having the tattoos I’d read forums where people had said they’d chosen not to have them because they didn’t want the ‘constant reminder’. I wonder if these people would have made the same decision if the term tattoo wasn’t used and if they’d realised how tiny the ‘tattoos’ would be.
In the radiotherapy department, there were two machines, named Elekta 1 and Elekta 2, on which I would be treated. At the pre-radio appointment, I was given a list of my appointment times and which machine I’d be treated on each day. Ahead of each appointment I put my appointment slip in the box so the team knew I’d arrived and got changed into the hospital gown I’d been given, before taking a seat in the waiting area.
Once called to Elekta 1 or 2, I removed the hospital gown from the area to be zapped, laid down onto the machine and the radiologists lined up the machine to the three tattoos, which was the part that took the most time. Once the radiologists were happy that I was positioned in exactly the right spot (the same position every day) and that the machine was lined up, they left the room and the radiation did its thing. During the first three weeks of appointments, I was zapped (I’m sure there’s a technical word for it) in three places; either side of my breast (where the cancer had taken hold) and the area around my collar bone (where cancer cells would spread next, if it were to have travelled).
My appointments were early morning, around 9:30 every day. This suited me well as it meant I could get straight back to work and settle for the day. On the first couple of mornings, I found the process very emotional, I can’t explain why. It’s odd being exposed where you’re never normally exposed to strangers and having them looking at and touching your chest. You’d think by now I’d be used to that but somehow it was different this time.
By the end of the first week, I was accustomed to the routine and the friendly radiologists kept me entertained with their chat and 80s music. Every one of the large team of radiologists was truly lovely.
In the final week they zapped the site of the cancer. This treatment was a lot quicker than the previous weeks as they had to line the machine up just the once.
Possible side effects include tiredness, aches and pains, lymphoedema, nausea/vomiting and a skin reaction similar to sun burn. I was really lucky to only feel mildly tired. For the tiredness I drank lots of water and to avoid a skin reaction I was using My Trusty Little Sunflower Cream (a cream designed for people recovering from burns) twice a day from a week before radio started and I’m still doing that now as the peak of treatment is 10-14 days after finishing.
How did your radio experience compare? Are you about to start radio? Feel free to ask any questions and share your experience in the comments below – I’d love to hear from you. In the meantime, here are my top tips for getting through radiotherapy treatment:
Don’t wear your best white bra
They often use a pen to exaggerate the tattoos or to mark a specific area and the marks can transfer.
Take someone along to your first couple of appointments
Like everything unknown, it’s a bit daunting at first so it’s good to have someone waiting for you when you come out of your appointment.
Get some My Trusty
The rays can take their toll on your skin. I was really lucky that my skin didn’t react and I’m 99% sure it was because I was lathering on My Trusty Little Sunflower cream. Get into a twice daily cream routine and you won’t regret it.
Take it easy
The radiation can make you tired so you don’t want to be trying to do too much. Listen to your body and if that means going to bed at 8pm or getting someone to drive you to the hospital, that’s fine, just take it in your own sweet stride.
Those are my recommendations, what are yours? Please share them in the comments below.
Lots of love,